Frequently asked questions

About

Who/What is ODIN?


ODIN is a collaborative group of centres with an interest in periprosthetic joint infections. It encompasses surgeons, infectious disease physicians, nurses, researchers and pharmacists.




How did ODIN start?


ODIN began through a round-table discussion surrounding PJIs. The current literature regarding PJIs is heterogeneous. PJIs can also be considered rare but devastating events. The combination of these factors lead to the recognition of the need for international collaboration to allow meaningful conclusions through the analysis of large cohorts. This lead to reaching out to centres with an interest in PJIs and an agreement to combine resources to tackle PJI research resulting in ODIN.




What is the primary aim of ODIN?


The primary aim of ODIN is to improve periprosthetic joint infection prevention, diagnosis and management through evidence based research.





Joining

Who can join ODIN?


Any centre with an active interest in managing periprosthetic joint infections affecting knee and hip arthroplasty are welcome to apply to join ODIN.




What is involved as an ODIN collaborator?


The cornerstone of the ODIN collaboration is the PJI Registry. The Registry relies on collaborator participation via contribution of accurate and comprehensive de-identified patient data using a RedCAP.




How do I join?


Joining is via an Expression of Interest (EOI) either through this website or via one of our current members. The EOI would then be discussed within the governance unit of ODIN and acceptance confirmed.




Is there a cost involved in joining?


No. There is no cost invovled in joining ODIN. However the research support required at each individual centre to help collate and upload data remains the responsibility of the centre.





The Registry

What is the ODIN registry?


The ODIN Registry is a comprehensive registry of prosthetic joint infections with approximately 900 data points per patient. It is both retrospective and prospective in nature. It encompasses demographic data, index procedure surgical data, peri-operative clinical data, diagnostic data, management and outcome data, microbial and anti-microbial data and patient reported outcome data. It is run through a RedCAP database and is de-identified in nature.




How is data added to the registry?


Data is collected via RedCAP from individual centres. Each individual centre is required to have their own RedCAP registry, or be able to utilize an existing ODIN registry. All registries use the same data-collection form, allowing easy collaboration of data amongst participants.




How can I use data from the registry?





Is the data de-identified?


Yes. All shared data is de-idenfied in nature.




Who owns the data?


Data remains the property of the institution which collects and uploads the data.




Can I withdraw my data from the registry?


Yes, within limitations of current ongoing research projects and ethical board requirements.





For Patients

What is the ODIN Registry?


The ODIN Registry collects data about joint replacement infections. Data includes information on the operation undertaken, how the infection was diagnosed and managed, what bugs were responsible for the infection and what the outcomes were.




How private is my data?


All data within the registry is held securely and remains de-identified. No identifiable data will be held or be accessed by other members of the group.




Can I refuse my data going onto the registry?


If you would prefer your data was not used within the registry, please contact your treating centre.




Can I view my data on the registry?


Unfortunately because all data on the Registry is de-identified, it is impossible to view a particular individual's data. Any request for obtaining personal data should be directed to your treating centre.




What is the data used for?


The data is used to improve prevention, diagnosis and treatment of joint repalcement infections.